| Welcome to the Nurses Webpage Introduction Over the last few years the role of the Paediatric Rheumatology Clinical Nurse Specialist (PRCNS) has become increasingly central to the speciality of paediatric rheumatology. Historically PRCNS’s, within the British Society of Paediatric and Adolescent Rheumatology (BSPAR), have been grouped together with Physiotherapists and Occupational Therapists under the umbrella of Allied Health Professionals (AHP’s). Whilst continuing to work closely with our AHP colleagues it has been increasingly necessary to also distinguish ourselves as a separate entity, in order to develop and promote the role of the PRCNS where we have the very real potential to influence practice. There are currently, according to our recent email audit, 19 nurses who are members of BSPAR. However we are aware through our networking of a total of 29 nurses who are working on a regular basis with children and young people with rheumatological conditions. Predominantly PRCNS’s are based in Tertiary Centres and share care with colleagues in both secondary and primary care ensuring that children and young people with rheumatological conditions have expert specialist care and can be manage as near to their own homes as possible. Many of the PRCNS’s are members of the RCN, Paediatric Rheumatology Specialist Nurses Group and further information can be found at www.rcn.org Aims of Group
Pam Whitworth is the Chair of the BSPAR and RCN nurses group. She is a member of the BSPAR executive representing the Nurses group. Pam works as a PRCNS in Birmingham. Her contact details are:
Gill Jackson is secretary to both BSPAR and RCN nurse groups, taking minutes for the meetings and maintaining an up to date membership records.
Her contact details are:
Liz Hutchinson is the primary RCN contact for the BSPAR and the RCN special interest group and is responsible for forwarding relevant emails to the membership. Liz works as a PRCNS at Nottingham. She is also an Ordinary Member of the BSPAR executive Her contact details are:
Meetings BSPAR
DEVELOPMENT OF NATIONAL GUIDELINES
USEFUL RESOURCES USEFUL WEBSITES
The above and many other useful resources can be found on the USEFUL LINKS section of the BSPAR website REFERENCES 1. BSPAR (2007) Position Statement on Professionals Working in Paediatric Rheumatology. Available on BSPAR website. 2. Department of Health (2004) The NHS Knowledge and Skills Framework (NHS KSF) and the Development and Review Process. London: DH 3. Department of Health (2004) Building a Safer NHS for Patients. The Chief Pharmaceutical Officers Report. DOH, chapters 3.4.5 & 6. 4. Department of Health (2004) NHS Job Evaluation Handbook Second Edition (Agenda for Change). London: DH 5. Hutchinson, L & Strike H, (2006) Juvenile Idiopathic Arthritis (JIA) in: Glasper, A., McEwing, G, & Richardson, J. (Eds.) Oxford Handbook or Children’s and Young People’s Nursing. Oxford: Oxford University Press. 6. Jackson, G., (2006) Paediatric Rheumatology. In: Hill, J. (ed.) Rheumatology Nursing – A Creative Approach. 2nd Ed. London: Whiley 7. National Patient Safety Agency (NPSA) (2004) Patient Safety Alert- Reducing the harm caused by Oral Methotrexate. NPSA. 8. Nursing and Midwifery Council (2004) Code of Professional Conduct: Standards for Conduct, Performance and Ethics. London: NMC (2004 currently under review). 9. Royal College of Nursing (2004) Services for children and young people: preparing nurses for future roles. London: RCN 10. Royal College of Nursing (2004) Administering subcutaneous methotrexate for inflammatory arthritis. London: RCN 11. Royal College of Nursing (2004) Adolescent Transitional Care. London: RCN. 12. Royal College of Nursing (2005) Competencies: Competency framework and guidance for developing paediatric epilepsy nurse specialist services. London: RCN 13. Royal College of Nursing (2006) Telephone advice lines for people with long term conditions: guidance for nursing practitioners. London: RCN
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